Entries Tagged as 'projectendo'

Back, back, forth, forth – progress in #project endo

Posted on: Thursday, May 12, 2011

Hmmm. Mixed bag from me this week I am afraid.

On one hand, I have been increasing my running this week, the longest I did was 5.5k and I am loving how each week I can feel my progress towards that 10k in July. *eyes on the prize*

Conversely, my endo has been so bad this week there are days (like today) where I am sofa bound in agony, having to get help with my bubs.

Yesterday I was supermum, in Tescos for 8am, seeing friends for playdates, feeding ducks, playing in garden, being a normal, functioning mum. Today I can barely walk and am exhausted with pain.

I really want this to end.

So, what are my options? Well, drugs that put me into a false menopause which you can only take for 6 months as they affect your bone density and cause such horrific side effects. I have always said no to these…

A hysterectomy is one I am always tempted with – “just take it all OUT!!!” – you will often hear me shout when it becomes unbearable. Great, you might think, I have got twins now so its not about preserving fertility as I wanted to do in my 20′s, that was what kept me going through the pain, and I have my delicious daughters now. No, the problem with a full radical hysterectomy (ovaries n’all) is that it shocks the body into instant menopause, so you get all those symptoms in a way that is harsh and unnatural. Oh, and you take HRT to help with the sudden drop in hormone levels. HRT contains oestrogen, endometriosis is an oestrogen dominance problem. It causes flare ups. You get the idea…even THAT wont cure it.

So you see, there are few options. The mirena coil isn’t working for me. For many women it helps enormously, but the bloating, weight gain, MOOD SWINGS? WHAT MOOD SWINGS?, and the persitent pain despite it’s presence mean that for me, nope, not happening.

I really do believe the body can heal itself. I have read enough about nutrition, stress, diseases, raw food benefits, enzymes, and a raft of therapies that I KNOW what to do.

It’s just that doing it, in a real world, with pain and children to look after, is difficult. And also financially tricky. To buy lots of superfoods costs money we don’t have (and I am not spending it on anything else I can tell you. I rarely drink, go out, buy clothes etc). Treatments cost money we don’t have, and we really, really don’t.

I want to see if endo has gone anywhere else in my body too. My next appointment is in June (made in March), so these things are sloooow. We don’t have private healthcare as its an existing condition, so no benefits of being able to get seen ASAP and the range of scans and services available.

I would love to do a juice cleanse, but the realities of that whilst looking after little ones I am concerned about. To eat 100% raw is expensive, and it so shouldnt be. Eating organic is expensive. So, what is the answer? Mutilate my body with a hyst in the hope it helps because the natural way is out of reach?

There must be a way. Am trying to stay positive.

It’s all part of the process.

Posted on: Friday, May 6, 2011

As Morcheeba once said.

It really is. This week has been a week of lots of pain (endo) and a dead Macbook. Both of which caused me a lot of stress but I am learning to go with the flow.

Living with a chronic condition means that I need, very often, to re-arrange parts of the jigsaw puzzle; I need to go back to bed before the pain gets worse or I pass out driving the car, to chill before I get more stressed and get stuck in a vicious cycle. For me to do this means by partner needs to be flexible, his boss needs to be understanding, and our friends and family who help with childcare need to be flexible too. It’s amazing how many people are involved these days when I go to bed. ;)

What a chain reaction for one person to go and have a kip with painkillers.

I often have to cancel or re-arrange friends, loved ones, business meetings, events, fun things, great things, important things. I am learning slowly that the mroe I stress about it, the harder it becomes. Stress makes pain worse. If I go with the flow, re-arrange the jigsaw pieces, accept that some days/weeks are like this, then all flows much better. I need to stop fighting my body and work with it.

I own a business and am a mum of precious twin girls so life is busy, but in all areas of my life the flexibility IS there, if I allow it and accept it.

Just a little tweak here and there of the jigsaw pieces is all.

Updates, discounts and the silk worm

Posted on: Monday, April 25, 2011

Hello all! I hope the egg holiday has been treating you well. I cannot BELIEVE how amazing the weather has been for the last few days, and the fact we only have a 3 day working week coming up is the kind of balance I love. More sunshine, please.

So, this last week has seen the start of my training for the 10k Boutique Sport Run in July. Since my last post I have had 6 lovely ladies pledge to join me on the run around Battersea Park, and it has been so nice Tweeting each other encouragement and training updates.

If you haven’t signed up yet and the idea of giving yourself a goal sounds tempting , you can also use the discount code BLOG25 when you register to get 25% off the fee as readers of my blog. Go on, sign up and if you do leave me a comment below or tweet me!

I have found the Nike+ GPS app so much fun and invaluable in getting me started. The app works on my iPhone and tracks via GPS each run I do, the speed I go at and allows me to record various “tags” to make a mental note of how I felt, what the terrain was, etc. It then syncs up data online with the capacity to challenge myself against my own speed and best times, and to challenge myself with other Nike+ users. I am such a geek, but I love that this little piece of tech has added some much-needed fun and encouragement to pounding the pavements.

I find it really useful and encouraging to know when I have completed a kilometre, and the app has the capability to let me know at intervals I select, how far I have gone. I can be quite lazy at pushing myself that extra bit, but knowing how far I have been and at what speed has really been fab and has driven me to think about how far I can run each time.

I love the Facebook and Twitter interaction too, as whenever a Facebook friend “likes” my run I get a cheer in my headphones as I run along. Every bit of encouragement helps I can tell you….:) I have a long way to go but my journey has started.

So, it has been a week and a half since I started taking Serrapeptase and in that time I have also completed 3 training runs. I am so pleased with what I have manage to achieve this week; I have started out with runs of 3.5k but I am so proud as my endo has held me back for so long that this toe in the water if progress really is amazing. If the silk worm enzyme has the possibility of helping my pain I cannot wait to share it with you all to educate on #projectendo.

I have had a few episodes of pain this week but nowhere near as bad as in recent weeks. I am currently taking 4 capsules of Serrapeptase 3 times a day to get the enzymes active, and I really feel it is having an effect. I will keep you all posted, of course, as part of  #projectendo.

The aim this week is to extend my distance on my runs and to combine it with some cross training on the bike, which means getting out and enjoying the weather – well, someone has to do it…

Until next time, wishing you a happy no-mans land week. You will probably find me at a park with my small people in the sunshine.
:)

Digging out the running shoes – Boutique Sport run

Posted on: Sunday, April 17, 2011

Ok. It’s with some trepidation I write this post, as I am about to commit to a task I know will be challenging.

I have just dug out my trainers and made a start this evening on what will be my training for the Boutique Sport 10k run on July 9th around Battersea Park.

Yip.

As you all know, my endo pain has been significant recently and getting back to exercise has been an important goal for me. So, when the lovely people from Boutique Sport dropped me a line about this event I was tempted to take the challenge, and you will see why…

Boutique Sport have cunningly combined getting fit with fashion and a little bit of glamour – always a winner to tempt us girls to run I think. In the past when I have done 5 and 10k runs you take your bag to the event, run the race then have a wipe down with some wet wipes and a squirt of deodarant before heading to the pub.

Not so with the Boutique Run. They have been sensible enough to start the run in the early evening, (a hot 10k in July is a killer), and after your efforts the fun continues. Freshen up in the hot showers and change for the evening before hitting the nail bar and the other pampering stations, glass of bubbly in hand, with fab music entertainment.

Now this sounds more like it to me.

This is the second year of the Boutique Run at Battersea and it looks set to be a lot of fun.

The charity partner is Breakthrough for Breast Cancer, but as I will be running this as part of #projectendo obviously my charity of choice is Endometriosis UK, for all the good work they do to raise awareness of endo and the much needed research.

I have watched the #teambangsontherun girls with much admiration and awe, and would so love to get back into exercising this Spring to work towards a fitter, healthier me and a fantastic evening out at the end of it all. I love the Boutique Sport ethos and think that for those women who may need a nudge to get out there and train the promise of a great girly evening afterwards is a lovely carrot to dangle.

You can “like” Boutique Sport on Facebook  and follow them on Twitter too.

I got my iPhone out this evening, Nike + GPS in hand and have made a start. It’s going to be a journey ahead as I train whilst dealing with chronic pain but I will blog about it all the way with #projectendo in mind.

So, two things to ask you.

1. Would you like to sponsor me to run 10k in the Boutique Run in July? If so, here is my fundraising page.

2. Do you wanna join me? I would love some company. C’mon girls….

J

x

Enzymes. High time.

Posted on: Tuesday, April 12, 2011

 

Bit of a strange week,  so far.

Me endo has been giving me enormous amounts of pain, and to deal with it I have been 50/50 proactive and determined versus depressed.

However, the renewed intensity of pain renews my verve to spread awareness and find an answer, so I launched the Facebook Group Project Endo to go hand in hand with this blog and my documentation of my journey in fighting endometriosis. I plan for Project Endo to link endo suffers with each other, to raise awareness and knowledge, and also to engage the practitioners who have helped and inspired me so others can gain from their expertise.

The fabulous Shazzie from Detox Your Word, whose journey and blog first lit the fire in me for optimal nutririon and raw food, mentioned Serrapeptase to me. Serrapeptase is an enzyme, which can actually dissolve scar tissue and reduce inflammation (more info here), which, when dealing with endo is PERFECT.

Info on SerraEzyme reads, “Serrapeptase contained in serraenzyme is an enzyme derived from the silk worm, it aids the digestion and clearing of non living tissue i.e. blood clots, cysts, scar tissue and arterial plaque. It is useful for any type of inflammation in the body getting rid of inflammatory debris.  It is helpful for relief from trauma, swelling and sports injuries and also to maintain a healthy digestive system.”

So, I have ordered some this week and will start taking it and let you know how it goes.

If you want to join me in #projectendo give me a shout, Endo ladies, join my journey. Health practitioners, lend us your knowledge.

Onwards an upwards in #projectendo ;)

Thank you, Shazzie. Thank you Silk worm.

Until next time. xx

 

Jo loves LEON

Posted on: Monday, April 11, 2011

I am a huge fan of the LEON chain of restaurants. I love the ethos of the brand, the styling, the food, the ingredients, the prices, the availability of fresh, well cooked and healthy meals…pretty much all there is to enjoy about a brand.

LEON have embraced the concept of fast food for foodies, and filled a gap in the market for a home cooked feel with a hell of a lot of style. LEON caters for those of us needing healthy options when we want, slightly cheeky options when we want, and some info on GI index with wheat and dairy free foods to boot.

The LEON menu is one I tend to turn to when in town as I know I can get smoothies, a fabulous salad for lunch, and there tends to be one in most parts of London now. (Please, PLEASE open a restaurant in Cambridge too, LEON people, if you read this, and I AM sure you will be of course!). So I am super happy to be reviewing the Leon: Naturally Fast Food. Book 2 on this blog as I continue with #projectendo.

Firstly, as a designer the book hits all the right places I look for in a recipe book; the fabulous kitsch meets kitchen design on some lovely uncoated stock enjoys a pride of place on my cookery bookshelf.

Secondly, the LEON food is simple to prepare, family orientated in nature, and perfect for the current nutritional focus I working with.

#projectendo is a journey of health and nutrition which requires me to focus on a way of eating without dairy, wheat, reduced meat intake and no refined sugars.LEON have some fabulous recipes in their second fast food book which keeps the other half happy, me happy, and the kids happy too. They even have a raw food section, oh the joys!

The muesli bars have been a winner with the kids for snack times and are nice and low in glycaemic index, and the baked sweet potatoes with a variety of toppings are so easy and delicious. I can’t wait to try  the 100 garlic chicken but I will warn you all before I do…

With thanks to Octopus Publishing, and Leon himself of course.;)

RTA’s, NLP and back to ABC

Posted on: Monday, April 4, 2011

Hi lovely people who read my blog.

I have been away for a week (did you miss me?!) and it felt weird not writing on any of my sites, but lovely to have a step back from everything.

I feel, frankly, shattered.

I am sure this is not uncommon for anyone to have stages like this (plus I recognise I am a working mum of young twins who does not sleep most nights and has a chronic pain condition, but that’s by the by) so I am taking time to go down a gear. To kick back as much as I can and re-assess the mania I surround myself with.

In a previous life when things felt like this I would have hopped in the car to go and stay with mates or family, drink some vino, read books and sleep. Or, more likely, book a flight to Barcelona/Milan/Budapest and hang loose in some coffee bars and people watch until my brain cells return.

The difference is now that having my beautiful bubs means its so difficult to re-charge for any period of time which is why, like most friends of mine who are parents and work too, I am currently too shattered to have a social life, exercise, have some time with my partner and some time for me that isn’t washing up for the 50th time.

I love my life, don’t get me wrong – I adore my partner and children, I have my own business which I love, and I have an amazing balance of city and country so I can feed the ducks in the sticks one day and be working in my Covent Garden office another. I get to use my brain and also zoom around play barns and farms with the ninos. Amazing. The thing I still seem to struggle with is balance, a little, teeny thing I have always had problems with. When I am up I am really really up, life and soul,full of energy, creativity and ideas. When I expend all that energy I am on the floor awaiting to be scraped up, all the more so now my batteries are flatter than a Mac Book on it’s last legs (and I refuse to buy yet ANOTHER battery from a “Genius”. Side bar).

So, I am cruising in 2nd gear now and taking some time. Of course as soon as I decided this last Monday I kicked back and became unwell for 4 days with what I can only imagine were detox symptoms a month in on #projectendo which kinda ruined my plans there for zen-like hovering by rivers with mindfulness books. In fact it was more like an explosion in a pyjama factory sponsored by Home Under the Hammer, but there you go.

During this last week I had the pleasure of a session with Jo James of Amber Life who held a Skype session with me on NLP. What a woman. We first met around 6 or 7 years ago when I rescued her from a deathly dull Chamber of Commerce or similar networking evening to ply with wine and sing the praises of Sister Snog, a group we are now both part of. Jo also works in the b.hive, so I was so thrilled to remake her acquaintance recently and to catch up.

I have dabbled in NLP before so know the benefits of re-wiring the brain to behave differently, but after one hour with Jo I had learnt a raft of new tricks to keep myself in balance, and I felt sooooo relaaaaaaaxed. It’s amazing to think that we hold all the answers to our state of mind and if we can tap into that – wow, we have some power. This seemed like the perfect timing for me, almost as if I need to detox my schedule as well as my body and surroundings. I am a believer in the universe putting things there for you in the right time, and I want to make sure I am open enough to see these things as they turn up and not just be a product of my own self-made tornado of “busyness”.

So, on Friday I felt fab. Relaxed, detox illness passed, bit of brain space, chilled. I went to lunch with my brother in Cambridge, had some sibling time which I love, and mooched around the shops on my own ( far easier than with a pram full of bored toddlers mashing their Eat Naturals bars into John Lewis products I can tell you). I even went home and managed to do some work, making for a perfectly rounded Friday set for the weekend.

The weekend didn’t exactly go according to plan. I was knocked off my trusty steed Steve the Hardrock Specialized when out for a ride with Miles and the kids on Saturday. I was cycling on the pavement having had to make a u-turn to pick up Tigger (the loss of cuddly toys is massive in out world, Ethy the pink bunny went AWOL this week too. Traumatic ), when a guy reversed from his drive straight into me and I went flying into the road. Thankfully the girls didn’t see as Miles was towing them in the trailer, and moreover I am mindful it could have been a while lot worse. However, bruised, shocked and battered I returned home, after an SOS call to bro and sis in law to come and collect me.

So after a mixture of set backs and leaps forward last week I am at the top of  a new week and am going to try and implement this “balance” thing more. This “relaxed” thing more too. #project endo is actually turning into #projectlifechange, and I am always open to this. Whenever serious changes have occurred before its always to move things forward beyond my wildest dreams. So, pesky setbacks I embrace you, and lets keep plodding on to see where this week will go. I have booked a massage for Thursday and am escaping to the sauna later to have a sweaty read of a book or two.

Until next time, gentle (bruised) hugs,

 

Jo

x

Update on #projectendo

Posted on: Friday, March 18, 2011

The social acceptance of being sick

Posted on: Monday, March 14, 2011

…and by sick I mean poorly, not the actual vom action.

Evenin’g all, hope you had a fab weekend.

So, one week in on the no sugar/fructose/yeast/alcohol addition to my already wheat and dairy free diet. I am eating at least 50% raw food  more like 70% or so), and I am working towards Candida elimination and, of course, optimal health.

So hows it going? Really well, I would say. For the last 3 days or so  have struggled with ‘flu symptoms which may be a viral thing or may be detox side effects, who knows. Other things I have noticed are that my hunger levels are non-where near as ravenous as usual and I am eating much lighter. I LOVE experimenting with new recipes and have found that raw choc cupcakes and cacao brownies are hitting the spot for me, and I am totally hooked on fresh veg juices.

I haven’t suddenly lost all the extra weight (yet), but this is all about health, so I am certain that my weight will balance out as the detox continues and I increase exercise.

One thing I have been thinking about this week is the social acceptance of being sick, of living in a body that is unwell and at dis-ease with itself.

Embarking on a (fairly) radical change of eating is always bound to instigate responses from observers, especially so, of course, if one blogs about it to all and sundry. It is clear I am currently overweight, and it is also clear to anyone who knows me that my body is having a tough time, as endometriosis, depression, and candida have plagued my health for years.

So, you would think that taking action is a good thing, yes? I believe so, but I think that the willpower it takes to make a big change scares people, so they seek to sabotage. “Why are you doing that? “oh my god, what else is there to eat?!” “Not drinking?? You?!?”.

Yes, I am not drinking for a while. It really is ok! I have more energy at the moment and I use alcohol to relax and escape which is great in some ways but it’s really fine to have a break.

There is so much I can eat, there are nuts, seeds, a huge variety of grains, rice, fruit and veg, the earth has loads of stuff we don’t notice when we stick to the same routine.

Cutting out wheat and dairy isn’t for everyone, but there is certainly sense in increasing the raw fruit and veg we intake, just read one of Patrick Holford’s tomes for that nuggett of truth.

It seems more socially acceptable to be overweight, take pills, complain of an illness and seek medical help than to take control of nutrition, seek alternative therapies and embark on a hourney of healing. Maybe the fact I consume bentonite clay to aid detox makes me sound like a crazy tree hugger, but why should it? If I was eating doughnuts every day and developing diabetes, that’s ok, thats normal.

Ahh, normal.

You see, I think the norm is to feel pretty crap, to be tired, to function below par, to have IBS, depression, lethargy, candida. I think the norm is to give in to standard ways of eating, to over consume and to go with the crowd. No one can treat their body badly for a length of time and not pay for it at some point. In our youth while livers work superfast to cope with alcohol abuse and metabolisms are still fast enough to burn extra calories we may feel lucky, but at some point that waist band gets tighter, the body struggles to detox the abuse and we feel worse for wear.

So why fear a new way of thinking, a new way of being? Does it highlight the need for change in other people’s lives? Do we all want others to feel as crap as us because the alternative is less socially acceptable? Does it feel strange to ask for a soya milk decaff latte, or to have a mineral water in the pub? What else can you fill life with if the overconsumption of food and booze is gone, is there a hole that needs addressing?

I was a smoker in my 20′s for a while, and gave up 6 years ago as a present to myself for my 28th birthday. I hung on to the act of smoking as a rebellious part of me, that creative designer-type social thing which would make me who I am.

In actual fact it made me less smelly, skint and likely to die of lung cancer.

The same thing with nutrition; I often fall off the bandwagon because the emotional and social pressure associated with food habits becomes too strong, but I am determined this time to let myself be well, and to live a life as full of vitality as possible.

What obstacles do you find to optimal health? Do you think its socially more acceptable to be sick?

Let me know what you think.

x

Menu del dia

Posted on: Friday, March 11, 2011

Hello peeps.

So, here is a little snapshot of what I ate today, simply because when I tell people I have cut out wheat, dairy, sugar and fructose for #projectendo they seem to think I am eating a lettuce leaf. Well, I am eating a lot of them but I can really feel that my tastes and needs are changing.

 

Here is what I had today:

Breakfast: Smoothie from cucumber juice, dark greens and avocado

Lunch:

Carrot and ginger juice
2 x boiled eggs, fresh tomatoes, beetroot, olive oil

Dinner:

Carrot and celery crudities dipped in home made hummous

Raw choc brownie (nuts, dates, cacao) with live soya yoghurt

Drinks: 2 x green tea, mint tea, decaf coffee ( still need to work on cutting out caffeine)

Suprisingly, I am nowhere near as hungry as I would have thought I would be if I seen this list myself a few weeks ago. I don’t get huge energy crashes and I genuinely feel full enough with all I have eaten.

It being a Friday night the thought of wine is loud in my head but I really  feel fine :)

Let’s hope I can keep it up to feel the benefits of a diet change and sort my poorly body out!

x

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