Entries Tagged as 'fatigue'

Light therapy for Winter

Posted on: Tuesday, November 20, 2012

I don’t know about you, but I struggle so much more with fatigue and depression once the nights draw in and darkness envelopes us from 4pm.

For endo warriors already battling pain and reduced serotonin levels, a light box can be a really useful aid to help combat the winter blues if you struggle with them. If you are dealing with pain and fatigue anyway, it can often be hard to make you sure get out enough in daylight hours to get the right amount of Vitamin D from sunlight before the evening draws in again all too quickly. Read More >

Endo, fatigue, 1 month roaaaaar and results

Posted on: Thursday, July 12, 2012

So, lovely people.

For the last month I have been eating a high raw diet and taking supplements to help my chronic endometriosis and fatigue. What a month it has been. I don’t need to tell you how unwell I have been. If you read this bog you will know, if you don’t, have a browse on through and you will see many posts of coping with chronic illness and pain. I don’t want to live like that any more.Here is a little update on how things are going….

High raw: I am not eating 100% raw foods at the moment, probably around 60-70% fresh, raw unprocessed foods. I have still had some meat and cooked foods but make it as organic and unprocessed as possible when I do. I am taking the journey at my own pace and working out what works and what doesn’t.

Coffee: It has now been 3 weeks since I had coffee. I would normally have had 3 or 4 fresh coffees a day (my poor weeping adrenal glands!) but now I am down to mainlining redbush tea and the odd black tea from time to time.

Booze: No vino or rum for a month ( I know!) and you know what? It’s FINE….feeling so much better outweighs the craving for a cheeky glass. I will get myself a little more healed before having an occasional drink, but for now, I am a no booze zone.

Painkillers: one month ago I was on the following cocktail – 20mg amatryptaline at night, gabapantin, and at least 8 30/500 cocodamol tablets PER DAY…..in addition to 40mg citalopram. Yip. I rattled when I walked. Now I have halved my antidepressants, cut out the amatryptaline, and I am on 2 – 4 8/500 cocodamols a day with an extra 30mg codeine if pain happens to be really bad. I have a way to go to rid myself of all the meds, but the progress is immense, truly immense.

Energy: I am still tired, I still have pain, but the most amazing thing is that I have more days when I have sustained energy ALL DAY and sometimes into the evening. Also, if I do something, like run or have a day out with the girls I am now not havng to pay for it for 3 days with chronic fatigue in bed. This is changing my life, folks.

Pain: I am keeping a daiy log of all my food, drink, supplements and symptoms, and can see that I still have a bad week around ovulation time. My pain is bad, and my tiredness is a lot worse, but I have had one – count it, ONE – day in bed this month, NOT THE USUAL 3 PER WEEK!!! I am having time with my little girls, time to DO MORE, read more, be more, LIVE MORE and it’s just so so liberating.

Exercise: I am still building up slowly from adrenal fatigue and exhaustion, but I am not back up to running 4 miles and cycling around 10. I have my goal for Cycletta in September and Run ot the Beat in October, but I am so thrilled that movement isn’t making me horizontal with pain and fatigue so much now.

So, what am I eating? At the moment a day’s menu might look like this:

Brekkie: oats and chia seeds soaked in raw apple juice with almonds and chopped fruit.

Snack: Almonds/fruit, green juice, cacao nibs and goji berries.

Lunch: Romaine rollups with chashew nut cheese and avocado, or mung beans with chopped pepper, cucumber, cold pressed oil, rocket, Udo’s oil.

Dinner: Quinoa, raw grated beetroot, poached egg, sea salt., Fruit.

Supplement wise, I am taking Juice Plus premium, Prozyme, Womens Essential vitamins, Neovite, Probiotics and pure mineral baking soda to help alkalise my poor acidic body.

I cannot tell you how much this is changing my life, folks. I was close to giving up, having my womb  and ovaries butchered and being on HRT in chronic fatigue forever. This is only the start of my journey too…I am super excited to learn all about making raw chocolate and amazing foods I have to discover. Each week I try out something new, from making courgette and cayenne pepper crisps to a new twist on a recipe, to reading more and more about how I can help myself.

This is a huge learning curve. I know I am at the start of something and I cannot wait to see where it takes me.

It’s a whole new world, folks. Hear me ROAAAAR!!!!

 

 

Running and riding for endo

Posted on: Wednesday, April 25, 2012

Ok endo warriors, my fellow sisters in pain and suffering, this is for you.

I am taking part in 2 events to raise money for endometriosis – the Nike Run to the Beat in September, and Cycletta 40km bike ride in Brighton in November. This is a big deal for a mum of two with extreme pain and fatigue who is on a mission.

I may have to walk the courses on the day, I may crawl it, but I will do it.

I would like to thank Freya lingerie for supporting me during my training and for sponsoring me to attend the Cycletta event.

If you would like to help me, you can donate to my JustGiving page here,.  Contact me for info on how your brand can get involved. If you want to join me and take part with me, let me know, and above all else please spread the word and donate.

Let’s do this.

 

Guest Diva Sam on achieving it all with endo

Posted on: Thursday, April 19, 2012

having it all with endometriosis

Earlier this week I wrote a post on building a career with a chronic illness, a subject that is huge in my life. It had an enormous response, and inspired my to pen an e-book which is currently in the making, and also to contact other ladies willing to share their stories and coping techniques. I am thrilled to introduce you today to the  lovely Sam Sparrow – we met last year at one of my Cherry Sorbet workshops and is part of the amazing crew I am proud to call my friends. Beautiful, ambitious, clever, stylish and like a whirlwind of creativity, Sam too has some demons to grapple with. Over to you, hun…

sam sparrow

On the face of it, I’m a healthy happy 29 year old with a 9-5 job. Peel away what you see on the surface, and what you actually get is a 29 year old with a busy job, a myriad of outside of work interests and a chronic illness known as endometriosis. It is the condition that no one knows about on the outside – and that makes functioning that little bit tougher. Read More >

The broken butterfly

Posted on: Sunday, October 23, 2011

broken butterfly

 

Hello Dexterous Diva readers. You find me worn down, worn out and fragile at the moment.

As you know, I had ‘flu for 10 days after a cold, then endo pain had a good stint leaving me isolated at home for a good fortnight or so. I am not good without social company and this made me feel really low.Depression came back to visit and hasn’t really shifted.

started my Zoladex treatment last Thursday, which I am really hopeful may help me, although for now I can feel it hitting me quite hard as my body adjusts to the HRT and strong medication. Read More >

Geek chic – a real pain

Posted on: Thursday, September 15, 2011

Geek chick - a real pain

 

One of the strangest outcomes of my endo is that it has really brought out the geek in me.

Not in the sense that I have a range of gadgets to help me cope, but that when I am incapacitated and having to veg out, I turn to my trusty Mac. Blogging takes my mind off things, and the fact that I am, without fail, having to spend a lot of time on my own dealing with pain and fatigue I have a new found love for social media and all it entails.  Twitter, Facebook, blogs and RSS feeds rock my world in those long hours. Read More >

The wheat cheat: intolerance and loving yourself

Posted on: Sunday, September 4, 2011

The wheat cheat

I have an intolerance to wheat.

I know this.

It makes my endometriosis pain much worse.  I feel hideous when I eat too much of it and I detoxed from it back in February. Read More >

Life, but not as you know it.

Posted on: Friday, September 2, 2011

Life...not as you know it

This little post is to share with you all how saddening, maddening, frustrating, painful and tiring it is living with endometriosis and it’s associated entourage of symptoms.

Every few weeks the pain gets so much that my body hits a wall of exhaustion and chronic fatigue sets it. I don’t just mean tiredness like you have after a big night out, or even the wall of foggy sleep deprivation I felt when the twins were still night feeding.  No, this is a tiredness that makes my very bones ache. My glands come up, I feel sick with tiredness, my pain reaches a whole new level of attacking every nerve, sinew and muscle. My head aches, my whole body feels battered. Shattered. Broken. Read More >

The F word

Posted on: Sunday, June 19, 2011

One would have thought, dear readers of my blog, that I would be wise to it by now.

One would imagine that I would re-read my posts, check through my diary, and say “ah, last month at this part of my cycle I was in bed for 2 days, so I shall therefore be prepared”.

No. The f word comes to bite every month, without fail, and I am always annoyed by it.

Fatigue.

Immense, all-consuming exhaustion. Bone aching, head to toe, marrow-draining tiredness. The kind that rest and sleep don’t quench; this is a body in pain, an inner dis-ease of dis-order, the kind that reminds me that ease and order are, for the moment, a million miles away.

This kind of fatigue is non-negotiable, calendar gate crashing and whole-heartedly shit. I have a life to live, children to play with, work to do, runs to train for, but no – endometriosis says I must be in bed, dreaming with the familiar hallucinations of white-hot pain.

Nudge me in a month’s time. I always forget.

 

Raw Monday, codeine Tuesday and crap Wednesday

Posted on: Wednesday, March 2, 2011

 

‘Ello ‘ello, blog reading lovelies.

I hope you are all well and having a good week – Spring is around the corner I think, roll on some days of sunshine and birds chirping.

So, update from me:

Raw Monday went well. As those of you who follow my tweets and this blog will know, I am on a journey, #projectendo in hashtag language, to deal with my long term endometriosis. I have cut out wheat and dairy from my diet (someting I did years ago but fell off the bandwagon) and am endeavouring to make my diet 60-70% raw so I get as many nutrients from unprocessed foods as possible.

This Raw Monday I had a smoothie for breakfast with bananas, apples, soya milk  and agave syrup. Lunch was ryvita ( not technically raw but hey, I need to get to grips with making my own raw crispbreads) and a pate I made from garlic, chick peas, tomatoes and coriander. I  experimented with the lovely Polly Noble’s kale crisps, which didn’t last long. I don’t have a dehydrator yet so got by with using the oven on the lowest heat with the door ajar.

By the afternoon I felt headachy and nauseous which I know from experience is a strong detox sign, so I added in a jacket potato for dinner with my  huge salad of chick peas, grated carrots with cucumber and  lemon juice/olive oil dressing to help slow the detox to be bearable.

I had lots of energy on Monday and felt really creative, energetic, calm and just, really, WELL. A nice feeling. I am sure I am on the right path when I get those moments or days of feeling so good.

I have kept as raw as possible since Monday too, as I want it to be part of my life and to become the norm. It will take a lot of work experimenting with recipes and food groups, but I can see benefits already. my skin is much, much clearer already and I haven’t worn foundation for the last few days as I have been looking ok without it. Also, my weight has begun to shift and I am creeping towards my goal inch by inch. ( and there are a few inches to go..)

I bought myself a soya cappuccino this week and struggled to drink it, the more I detox the stronger the effects of my usual vices; caffeine is something else I plan to greatly reduce, and this week I have been having 1 or 2 cups of coffee a day, a vast improvement from my 4-5 mugs, and frankly a miracle given the fact the twins have been teething this week and therefore awake most nights.

So, Monday – thumbs up. Nice one. Great, on the road.

Roll to Tuesday, I had been awake since 2am with the girls crying/teething during the night and my belly also decides to distend and become very painful. At 6 am I crawled back to bed with a codeine painkiller, the first in 10 days or so, and managed to get some sleep. I was shocked, however, at how pronounced the side effects of the codeine were; given I had built up quite a tolerance to it again recently before my laparoscopy and during recovery time, I can tell that my little detox so far has done a lot. I felt as though ants were crawling all over my skin and in my hair, and had uncontrollable itching and irritation. I have never had such a strong reaction to codeine, and it acted as a reminder that my body doesn’t like this stuff, and to stay away from it as much as possible.

Today has been, frankly, crap. I didn’t sleep much again last night but also have the inherent exhaustion that my condition brings. My belly is distended today so much that walking is uncomfortable, and I don’t have much energy to do anything. I struggled immensely today being at home with the ninos, and was relieved when at 3pm my aunt in law popped over to take them for a walk and I could crawl back to bed.

I feel frustrated. It so often seems that its  1 step  forward and 2 steps back. But, I suppose it still averages out at a step of improvement so I need to be mindful of small progress.

Having had so many good days  recently I can see how I became so uterly despondent last year whrn the ba times return. Being in pain in lonely. It confines you to a small world of isolation and it is so, so hard to remain upbeat when your body is sore and sick. I am really trying though. I so want to be fit, well and healthy again, and I am determined to find the way.

I fiind that I become angry about things I feel like I cannot change. For example, I am totally convinced by the benefits of acupuncture, yoga and massage therapy. I know they work for me, I know they help, but we simply cannot afford it. It seems to sad and so wrong that I should be considering a hysterectomy and all the issues it would bring with it when I KNOW there are therapies which help, but how on earth am I supposed to be able to pay for them?

I really don’t buy much, I havent bought new clothes in ages (and goodness knows I need them), I dont spend money on beauty treatments like I used to when I had a real job, and basically as a Mum of two running her own business, money is tight.

It angers me that these therapies aren’t available on the NHS, that we are handed drugs to manage pain quicker than exploring Eastern treatments. I would love to run away on a retreat, to detox, have colonics, massage, have time to adjust to a new diet, let my body cleanse itself and partake in yoga, acupuncture and meditation. Back in the real world this doesnt happen, although I do keep asking the universe for a way.

It is my hope that my journey will shine a light to others, so I need to find a way to bring the right mix of holistic medicine and raw foods into my life. If other people are to also find a way then I need to show them, and that is the tricky part at the moment. Food is one part of the equation, so I am trusting that as the raw magic works so will follow the ability to afford the extras.

So, universe, I know you read my blog and here is my wishlist:

- regular acupuncture once a month or more

- the money to be able to afford raw foods and the superfoods I need to better my diet

- a juicer to get the good stuff out of fruit and veg and to mainline the fresh juice :)

- a dehydrator, not essential immediately, but this is a wishlist after all

- regular massage therapy, once a month

For my part of the bargain I will continue to trust that I will recieve all I need.  I will try to stay positive and I will still try to stay happy with myself and my body even though I look like the Michelin man currently.

 

Until next time x

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