Entries Tagged as '10 years'

Guest Diva: Sally Wilson on M.E

Posted on: Tuesday, July 10, 2012

Today’s guest diva is the lovely Sally Wilson. Thanks so much Sally  for sharing your story here on coping with M.E….over you to.

Two years on and I still can’t read forums or a lot of blogs on ME/CFS because I find them too upsetting and often quite fatalistic. I think ME/CFS is about 100 different illnesses labelled into one. I couldn’t cope with reading a post by someone who had been suffering for 10 years and then another about someone who worked and was physically active while I was still coming to terms with the turmoil of my own situation.
My ME was extreme fatigue, delayed tiredness from overexertion, difficulties with my memory and concentration, sensory overload and dietary problems.

I say ‘was’ because I truly believe that I am in the final stages of recovery and I think this is something important for everyone who is suffering from ME to hear: you will get better! And really that’s all that matters! Read More >

Guest Diva: Lisa on chronic illness

Posted on: Tuesday, May 29, 2012

When I was very kindly asked to write this piece, I did think – ‘Am I the right person?’ I’ve really never thought of myself as ‘chronic’ before. To the point where I actually looked it up, just to make sure I was.

“A chronic condition is a human health condition or disease that is persistent or otherwise long-lasting in it’s effects”

Ah, o.k.

I live with a few conditions, but I’ve never thought of myself as suffering with them to be honest. I was born with Cerebral Palsy on the left hand side of my body. I know no different. This in itself makes it easier to deal with. To me it is ‘normal’ Ask me if I could change it tomorrow, I would honestly say no. In my mind, there is nothing wrong with me. My balance and motor skills can be a bit dodgy sometimes. The more stressed , tired or agitated I am, the worse they get, but generally living with it is easy. Explaining it to people sometimes is the hard bit. “ I would not have guessed, really, you have cerebral palsy, but you are SO capable!” is the response I get from a lot of people. They mean well, but I often wonder where they got their slightly misguided vision of Cerebral Palsy from. Bits of my body may not work 100%, but my brain works perfectly thank you. As do many people’s with CP. The fantastic comedian Laurence Clark has a PHD in Computer Science and his wife Adele who also has CP is studying for a Masters degree. You get my point. There is still a long way to go in changing people’s perception of disability sadly. The more people in the public eye with disabilities, the better I believe. You have to start with yourself if you want to change attitudes though. Read More >

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